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Fundraising Consultant

Digital
Posted 2 months ago, valid for 9 days
Salary

Competitive

Contract type

Part Time

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Sonic Summary

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  • We are looking for an experienced Fundraising Consultant to create and implement a comprehensive fundraising program for Barth syndrome, an ultra-rare disease impacting around 350 individuals worldwide.
  • Candidates should have demonstrated fundraising experience in nonprofits, healthcare, or mission-driven organizations, with a proven track record in securing funding from various sources.
  • The role requires expertise in managing digital fundraising campaigns, strong grant research and proposal writing skills, as well as the ability to effectively communicate complex medical information to donors.
  • The consultant will develop strategies across individual giving, corporate partnerships, and crowdfunding while engaging prospective donors and creating compelling fundraising narratives.
  • The position requires a minimum of 5 years of relevant experience, with a competitive salary of $75,000 to $90,000 per year.

We are seeking an experienced Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.

We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.

The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.

Responsibilities
  • Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations.
  • Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
  • Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
  • Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations.
  • Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
  • Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.
  • Develop and execute a diversified fundraising strategy across individual giving, major gifts, corporate partnerships, grants, sponsorships, and crowdfunding.
  • Identify, cultivate, and engage prospective donors, foundations, corporations, government funding bodies, and strategic partners.
  • Create fundraising narratives, cases for support, proposals, presentations, sponsorship packages, and donor communications.
  • Plan and manage digital fundraising campaigns through GoFundMe or similar fundraising platforms, email, social media, and other online channels.
  • Build donor stewardship programs that strengthen relationships, encourage recurring giving, and improve retention.
  • Establish fundraising targets, timelines, budgets, reporting processes, and performance metrics.


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