Patient Education Manager, NF1 PN, West

This is what you will do: 

The NF1 PN Patient Education Managers (PEMs) are an empathetic and trusted educational resource for NF1 patients and families. They are responsible for engaging with the local NF1 patient community via 1:1 meetings; conducting unbranded and branded patient education at scale through programs; and (in close collaboration with Alexion’s Patient Advocacy team) partnering with local and regional NF1 advocacy groups to further raise awareness of NF1 burden, NF1 disease progression, and NF1 PN treatment. 

In addition to these responsibilities, PEMs also refer patients and caregivers to Case Managers for case management support when starting on Alexion therapy and connect the NF1 community, as appropriate, to local advocacy networks and approved resources to best support patients and their families through the treatment journey.  

You will be responsible for: 

• Developing, in close partnership with Alexion Patient Advocacy and NF1 PN brand marketing, a regional patient engagement plan that strategically supports commercial priorities   

• Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively (e.g.: Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, Patient Services, etc.) 

• Educating patients and caregivers via 1:1 meetings, including face-to-face interactions, about NF1 disease state, NF1 PN treatment, and Alexion’s patient support programs 

• When possible, conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale 

• Building a robust rare disease network of NF1 PN advocates via active participation in local advocacy events to identify educational needs, raise disease awareness, and promote patient empowerment 

• Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership 

You will need to have: 

• Minimum of 4 years business experience in the healthcare industry 

• Experience engaging with patients and caregivers with rare/chronic conditions 

• Empathy for others with proven ability to listen well, connect meaningfully, and present complex information in a clear and engaging manner during 1:1 meetings 

• High initiative, solid work ethic, and consistent accountability 

• Ability to adapt quickly and commitment to react positively to frequent change in a high-energy, fast paced environment 

• Excellent presentation skills to diverse stakeholders in varied settings that will include groups of  150+ people   

• Strong organizational capabilities that will facilitate strategic and efficient territory management over a large geography 

• Ability to travel 60-80% of time, including evenings and weekends. Willingness to attend in-person impromptu trainings, educational programs, and business meetings as necessary. Potential territory to cover includes the following states: Alaska, Arizona, California, Hawaii, Idaho, Iowa, Minnesota, Montana, Nebraska, Nevada, New Mexico, North Dakota,Oregon, South Dakota, Utah, Washington, Wyoming 

• Valid driver's license and clean driving record 

• BA/BS degree is preferred, advanced degree a plus 

We would prefer for you to have: 

• At least three years field-based experience in account management, patient education, or sales 

• Experience assisting patients/caregivers  

• Background in advocacy, nursing, rare disease support, or social work 

• Understanding of community engagement groups and non-profit organizations  

• Understanding of managed care and self-administered products  

• Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare disease specific knowledge of these elements is a plus 

• Knowledge of Oncologic, Neurologic, or Rare Disease conditions  

• Bilingual, Fluent in reading and speaking Spanish 

The annual base pay for this position ranges from $135,332 to $202,998. Hourly and salaried non-exempt employees will also be paid overtime pay when working qualifying overtime hours. Base pay offered may vary depending on multiple individualized factors, including market location, job-related knowledge, skills, and experience.  In addition, our positions offer a short-term incentive bonus opportunity; eligibility to participate in our equity-based long-term incentive program (salaried roles), to receive a retirement contribution (hourly roles), and commission payment eligibility (sales roles). Benefits offered included a qualified retirement program [401(k) plan]; paid vacation and holidays; paid leaves; and, health benefits including medical, prescription drug, dental, and vision coverage in accordance with the terms and conditions of the applicable plans. Additional details of participation in these benefit plans will be provided if an employee receives an offer of employment. If hired, employee will be in an “at-will position” and the Company reserves the right to modify base pay (as well as any other discretionary payment or compensation program) at any time, including for reasons related to individual performance, Company or individual department/team performance, and market factors.